Exploring the Lived Experiences of Chronic Illness Patients: Understanding the Dual Role of Emotional and Psychological Aspects, Communication, and Social Support

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Liza Diniarizky Putri
Andi Subhan Amir

Abstract

Chronic illness significantly impacts individuals' emotional and psychological well-being, yet the complexities of how patients cope with these conditions remain insufficiently explored. While existing research has focused on medical and physical aspects, the role of social support and communication in managing chronic illness has not been deeply understood. Specifically, the emotional and psychological experiences of patients are often overlooked in favor of quantitative metrics. This study addresses the gap in understanding by investigating how patients emotionally respond to their chronic illness diagnosis and how communication with healthcare providers and family influences coping mechanisms. Using a phenomenological approach, this research explores the lived experiences of individuals dealing with chronic illness, highlighting the importance of communication and social support. Data were collected through in-depth interviews with 12 participants and analyzed using thematic analysis to uncover key themes of emotional distress, coping mechanisms, and the influence of social networks. The findings indicate that while patients experience significant emotional distress, their coping strategies—especially those involving family support and healthcare communication—play a crucial role in managing stress. These results contribute to a more nuanced understanding of the emotional dimensions of chronic illness and suggest the need for integrated healthcare approaches that address both physical and emotional well-being. The study’s implications call for future research on cultural differences in coping with chronic illness and the role of long-term emotional support in patient outcomes.

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