Understanding the Meaning of Digital Health Access Among People with Physical and Sensory Disabilities: A Phenomenological Study

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Yudianto Budi Saroyo

Abstract

Mobile health (mHealth) applications have become a vital component of modern healthcare delivery, yet their design and implementation often fail to consider the lived experiences of individuals with disabilities. Within this context, the subjective challenges faced by users with physical or sensory impairments remain underexplored, particularly in relation to autonomy and digital inclusion. Although previous studies have addressed technical barriers, little is known about how these users emotionally experience and interpret exclusion from digital health platforms. This study asks: How do individuals with physical or sensory disabilities experience mobile health applications in their everyday lives? Using a descriptive phenomenological approach, this research explores the essence of digital exclusion as it is lived and felt by users themselves. Semi-structured interviews were conducted with nine participants (five with physical disabilities and four with sensory disabilities), aged between 24 and 61 years, representing diverse gender identities and technology usage backgrounds. The data were analyzed through thematic reduction to reveal core experiential themes. The findings demonstrate that users encounter not only functional barriers but also emotional burdens such as frustration, dependence, and a diminished sense of self-worth. Despite these challenges, participants expressed hope for more inclusive digital futures, revealing a complex interplay between exclusion and resilience. These results offer a deep, person-centered understanding of the phenomenon and highlight dimensions that previous usability-focused studies have overlooked. This study contributes to the field of medical informatics by emphasizing the importance of integrating lived experience into the design of mHealth technologies and encourages further research grounded in phenomenological methods.

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References

Davies, E. H., Fieggen, K., Wilmshurst, J., Anyanwu, O., Burman, R. J., & Komarzynski, S. (2021). Demonstrating the feasibility of digital health to support pediatric patients in South Africa. Epilepsia Open, 6(4), 653–662. Scopus. https://doi.org/10.1002/epi4.12527

Fernández-Díaz, E., Iglesias-Sánchez, P. P., & Jambrino-Maldonado, C. (2020). Exploring who communication during the COVID 19 pandemic through the who website based on W3C guidelines: Accessible for all? International Journal of Environmental Research and Public Health, 17(16), 1–17. Scopus. https://doi.org/10.3390/ijerph17165663

Kayser, J., Wang, X., Wu, Z., Dimoji, A., & Xiang, X. (2023). Layperson-Facilitated Internet-Delivered Cognitive Behavioral Therapy for Homebound Older Adults With Depression: Protocol for a Randomized Controlled Trial. JMIR Research Protocols, 12. Scopus. https://doi.org/10.2196/44210

Kim, H.-C., & Zhu, Z.-Y. (2020). Improving social inclusion for people with physical disabilities: The roles of mobile social networking applications (MSNA) by disability support organizations in China. International Journal of Environmental Research and Public Health, 17(7). Scopus. https://doi.org/10.3390/ijerph17072333

Kohn, M. J., Chadwick, K. A., & Steinman, L. E. (2024). Adapting Evidence-Based Falls Prevention Programs for Remote Delivery—Implementation Insights through the RE-AIM Evaluation Framework to Promote Health Equity. Prevention Science, 25(Suppl 1), 163–173. Scopus. https://doi.org/10.1007/s11121-023-01519-z

Lai, B., Young, R., Craig, M., Chaviano, K., Swanson-Kimani, E., Wozow, C., Davis, D., & Rimmer, J. H. (2023). Improving Social Isolation and Loneliness Among Adolescents With Physical Disabilities Through Group-Based Virtual Reality Gaming: Feasibility Pre-Post Trial Study. JMIR Formative Research, 7(1). Scopus. https://doi.org/10.2196/47630

Masi, A., Mendoza Diaz, A., Tully, L., Azim, S. I., Woolfenden, S., Efron, D., & Eapen, V. (2021). Impact of the COVID-19 pandemic on the well-being of children with neurodevelopmental disabilities and their parents. Journal of Paediatrics and Child Health, 57(5), 631–636. Scopus. https://doi.org/10.1111/jpc.15285

Mills, K. A. (2019). Big data for qualitative research (p. 78). Scopus. https://doi.org/10.4324/9780429056413

Nguyen, K. H., Cemballi, A. G., Fields, J. D., Brown, W., Pantell, M. S., & Lyles, C. R. (2022). Applying a socioecological framework to chronic disease management: Implications for social informatics interventions in safety-net healthcare settings. JAMIA Open, 5(1). Scopus. https://doi.org/10.1093/jamiaopen/ooac014

Pak, S. S., Janela, D., Freitas, N., Costa, F., Moulder, R., Molinos, M., Areias, A. C., Bento, V., Cohen, S. P., Yanamadala, V., Souza, R. B., & Correia, F. D. (2023). Comparing Digital to Conventional Physical Therapy for Chronic Shoulder Pain: Randomized Controlled Trial. Journal of Medical Internet Research, 25. Scopus. https://doi.org/10.2196/49236

Sanchez Santos, M. T., Williamson, E., Bruce, J., Ward, L., Mallen, C. D., Garrett, A., Morris, A., & Lamb, S. E. (2020). Cohort profile: Oxford pain, activity and lifestyle (OPAL) Study, a prospective cohort study of older adults in England. BMJ Open, 10(9). Scopus. https://doi.org/10.1136/bmjopen-2020-037516

Scheer, J., Areias, A. C., Molinos, M., Janela, D., Moulder, R., Lains, J., Bento, V., Yanamadala, V., Correia, F. D., & Costa, F. (2023). Engagement and Utilization of a Complete Remote Digital Care Program for Musculoskeletal Pain Management in Urban and Rural Areas Across the United States: Longitudinal Cohort Study. JMIR mHealth and uHealth, 11. Scopus. https://doi.org/10.2196/44316

Shikako, K., Mogo, E. R. I., Grand-Maison, V., Simpson, R., Pritchard-Wiar, L., & Majnemer, A. (2021). Designing user-centered mobile health initiatives to promote healthy behaviors for children with disabilities: Development and usability study. JMIR Formative Research, 5(9). Scopus. https://doi.org/10.2196/23877

Slater, H., Stinson, J. N., Jordan, J. E., Chua, J., Low, B., Lalloo, C., Pham, Q., Cafazzo, J. A., & Briggs, M. (2020). Evaluation of Digital Technologies Tailored to Support Young People’s Self-Management of Musculoskeletal Pain: Mixed Methods Study. Journal of Medical Internet Research, 22(6). Scopus. https://doi.org/10.2196/18315

Stratton, C., Kadakia, S., Balikuddembe, J. K., Peterson, M., Hajjioui, A., Cooper, R., Hong, B.-Y., Pandiyan, U., Muñoz-Velasco, L. P., Joseph, J., Krassioukov, A., Tripathi, D. R., & Tuakli-Wosornu, Y. A. (2022). Access denied: The shortage of digitized fitness resources for people with disabilities. Disability and Rehabilitation, 44(13), 3301–3303. Scopus. https://doi.org/10.1080/09638288.2020.1854873