Patient Experience with Chronic Fatigue Syndrome: Physiological Dynamics and Challenges in Daily Life

Abstract

Chronic Fatigue Syndrome (CFS) is a complex condition characterized by persistent fatigue that significantly impairs daily functioning. While previous studies have primarily focused on the biomedical and physiological aspects of CFS, the lived experiences of patients remain underexplored. Despite increasing recognition of the condition, little is known about how individuals navigate its unpredictable symptoms and the social stigma associated with it. This study employs a phenomenological approach to investigate the subjective experiences of individuals with CFS, focusing on their adaptation strategies and emotional responses. Data were collected through in-depth interviews with diagnosed individuals, and thematic analysis was used to identify key patterns in their narratives. The findings highlight the unpredictability of energy fluctuations, the challenges in obtaining a diagnosis, and the significant emotional and social impact of the condition. Participants reported difficulties in maintaining employment, social relationships, and daily routines due to their symptoms. Additionally, they developed individualized coping mechanisms such as pacing, dietary changes, and alternative therapies to manage their condition. These results emphasize the importance of incorporating patient narratives into medical practice to enhance diagnostic accuracy and treatment strategies. Future research should explore longitudinal experiences and diverse cultural contexts to further enrich our understanding of CFS.